Life-saving Gift for Jack & other MPS children

Genistein Treatment
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Jack & MPS children
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Genistein Treatment

Update from Jack's Family
We started this Gift Page for Jack in August this year. Since we started, some other amazing families have come forward to set up pages telling their own stories to help us raise the funds we need. ALL of the funds from these pages will go towards the life-saving treatment for these children. Some may be families in your area, if so we'd be hugely grateful if you could show as much support as you can by raising awareness with your friends, neighbours, relatives, local press. We're sure, with enough local support, we can make a life-changing difference to all of them. Thank you.
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This is our son Jack, he's two and adorable. He LOVES orange and green tic tacs, running around on the beach, and (believe it or not), watching Countdown on tv!

Jack also suffers from Sanfilippo disease. This is a horrible disease which gradually destroys their brain functions and physical ability. Without treatment Jack and other children suffering from the disease will gradually become mentally and physically disabled and will die in childhood.

We need to raise £600,000 for 20 children to trial a new drug at Manchester Children's Hospital in the UK. We know it's an absolutely mad sum of money, but this treatment is known to work and is literally ready NOW, it just needs to be clinically approved so it can be mass produced and made available to save hundreds of children's lives around the world.

We'd love it if you're able to help. We know it's a lot of money and there are a million charities out there who all really need help but if you can spare a few pounds, dollars, euros, yen anything that would be amazing and would make all the difference. Once the trial is carried out the treatment can be made available, at very little cost, for Jack and other children with this disease all over the world.

Please pass this Gift Page link (www.shareagift.com/jack) on to as many friends, family, colleagues, contacts as you can. There are children like Jack with Sanfilippo disease all over the world - with a little bit of help we just know we can get them the help they need!

Thank you, with love, Jack's Family
Contribute
£18,043.27
raised out of £600,000.00 goal

3%

  • created 1297 days ago by
    Jack's Family

Invitees (86)   
Tessa
Robert
Shareagift
Elizabeth Anne
Tim
Ian
Parkside
Jennifer


  • Elizabeth Anne Greenwell made a contribution   30 Dec 2013

    Love, Doreen & Anne xx
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  • Michelle McDermott made a contribution   27 Nov 2012

    Good luck with the fundraising xxx
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  • Michelle McDermott made a contribution   27 Nov 2012

    Good Luck with the fundraising xx
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  • gemma nelson made a contribution   18 Sep 2012

    donated on behalf of ASDA Grangetown and all there customers Thank you xx
    Post a reply
  • gemma nelson made a contribution   18 Sep 2012

    on behalf of ASDA Grangetown and their customers, Thank you xx
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  • gemma nelson made a contribution   19 Sep 2012

    contributed from ASDA Grangetown< a big thank you to them and all their customers x
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  • gemma nelson made a contribution   18 Sep 2012

    on behalf of ASDA Grangetown and their customers THANK YOU xx
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  • gemma nelson made a contribution   19 Sep 2012

    thanks to ASDA Grangetown and all their customers x
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  • gemma nelson made a contribution   21 Oct 2012

    from a charity night at the Golden Fleece. Also A thousand pound from an anonymous donor!! Thank you xx
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  • gemma nelson made a contribution   12 Sep 2012

    give all our love and blessings may god be with you and your family Bill & Joyce Smith xx
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  • gemma nelson made a contribution   20 Sep 2012

    BIG Thank you to ASDA Grangetown and all their Custormers x
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  • gemma nelson made a contribution   19 Sep 2012

    bigs thanks to ASDA Grangetown and their customers xx
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  • gemma nelson made a contribution   19 Sep 2012

    big thanks to ASDA Grangetown and their customers xx
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  • gemma nelson made a contribution   08 Sep 2012

    collection from family,friends and residents of Tuntall Bank estate, Ryhope for little Jack given with love and all good wishes< from Elsie, Doreen, Joyce and Jean x
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  • gemma nelson made a contribution   29 Dec 2012

    from staff at Devitos Sliksworth. Thank you xx
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  • gemma nelson made a contribution   27 Sep 2012

    Big Thank you to ASDA Grangetown and there customers for raising the money for Jack! THANK YOU from Jack xx
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  • gemma nelson made a contribution   15 Jan 2013

    Thank you to the kids at Blue WAtch youth centre. doing a sponsored bike ride xx
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  • gemma nelson made a contribution   15 Jan 2013

    Thank you to the kids at Blue WAtch youth centre. doing a sponsored bike ride xx
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  • gemma nelson made a contribution   05 Oct 2012

    big Thank you to Iceland Ryhope ASDA Ryhope and Jacks Grandas family x
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  • jill hoolin made a contribution   26 Oct 2012

    GOOD LUCK X
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  • John Deacon made a contribution   15 Sep 2012

    Sorry its so little but its last £5 in my bank but its well worth giving it to help very special little boy
    Post a reply
  • Joanne Pownall made a contribution   20 Aug 2012

    Wishing you all the luck in the world xx
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  • Joanne Pownall made a contribution   20 Aug 2012

    Wishing you all the luck in the world xxx
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  • Joanne Pownall made a contribution   20 Aug 2012

    Wishing you all the luck in the world xxx
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  • Kathryn Duggan made a contribution   09 Nov 2012

    Every good wish for Jack and hope you reach your target soon.
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  • peter jones made a contribution   26 Oct 2012

    hope this helps
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  • Julia Preston made a contribution   20 Aug 2012

    Read the piece in The Northern Echo. Jack is beautiful. Gemma, you are amazing and I hope you raise the money you need. xxx
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  • Graeme Elliott made a contribution   17 Aug 2012

    Best of luck Rob and family x
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  • Sara Round made a contribution   26 Oct 2012

    Good luck x
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  • jenny ness made a contribution   16 Dec 2012

    Not much but hope it helps
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  • Keith Riding made a contribution   19 Nov 2012

    My heart goes out to Jack and all the other MPS children. I hope and pray you raise this money.
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  • Tracy McKenna made a contribution   26 Oct 2012

    Hope you reach your target soon and your beautiful little boy can be helped. Best wishes Tracy
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  • A WCHS Student made a contribution   20 Apr 2013


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  • denise trussell made a contribution   01 Nov 2012

    I have a grandson the same age as Jack called William, please get better soon Jack.
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  • Paul Shields made a contribution   01 Oct 2012

    A tiny gesture......
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  • Tricia Rimmer made a contribution   26 Oct 2012

    Sending all good wishes
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  • Tricia Rimmer made a contribution   26 Oct 2012

    Sending all good wishes
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  • Tricia Rimmer made a contribution   26 Oct 2012

    Sending all good wishes
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  • Yvonne Walmsley made a contribution   26 Oct 2012

    X
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  • Stacey Johnson made a contribution   27 Oct 2012

    For a beautiful little boy.
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