Life-saving Gift for Jack & other MPS children

Genistein Treatment
recipient
Jack & MPS children
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£18,093.27
raised out of £600,000.00 goal
3%
ends 31 Dec 2013

  • created by
    Jack's Family

Genistein Treatment

Update from Jack's Family
We started this Gift Page for Jack in August this year. Since we started, some other amazing families have come forward to set up pages telling their own stories to help us raise the funds we need. ALL of the funds from these pages will go towards the life-saving treatment for these children. Some may be families in your area, if so we'd be hugely grateful if you could show as much support as you can by raising awareness with your friends, neighbours, relatives, local press. We're sure, with enough local support, we can make a life-changing difference to all of them. Thank you.
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This is our son Jack, he's two and adorable. He LOVES orange and green tic tacs, running around on the beach, and (believe it or not), watching Countdown on tv!

Jack also suffers from Sanfilippo disease. This is a horrible disease which gradually destroys their brain functions and physical ability. Without treatment Jack and other children suffering from the disease will gradually become mentally and physically disabled and will die in childhood.

We need to raise £600,000 for 20 children to trial a new drug at Manchester Children's Hospital in the UK. We know it's an absolutely mad sum of money, but this treatment is known to work and is literally ready NOW, it just needs to be clinically approved so it can be mass produced and made available to save hundreds of children's lives around the world.

We'd love it if you're able to help. We know it's a lot of money and there are a million charities out there who all really need help but if you can spare a few pounds, dollars, euros, yen anything that would be amazing and would make all the difference. Once the trial is carried out the treatment can be made available, at very little cost, for Jack and other children with this disease all over the world.

Please pass this Gift Page link (www.shareagift.com/jack) on to as many friends, family, colleagues, contacts as you can. There are children like Jack with Sanfilippo disease all over the world - with a little bit of help we just know we can get them the help they need!

Thank you, with love, Jack's Family


  • Beverley

    Beverley Courtie made a contribution   15 May 2017

    Beverley has made a contribution
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  • Elizabeth Anne

    Elizabeth Anne Greenwell made a contribution   30 Dec 2013

    Love, Doreen & Anne xx
    Post a reply   
  • jackie

    jackie page made a contribution   15 Jul 2013

    this was donated by RACHEL MEEHAM THANK YOU SO MUCH XX
    Post a reply   
  • jackie

    jackie page made a contribution   08 Jul 2013

    this was donated by HAYES travel THANK YOU XX
    Post a reply   
  • Elizabeth Anne

    Elizabeth Anne Greenwell made a contribution   02 Jul 2013

    Love, Anne x
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  • jackie

    jackie page made a contribution   01 Jun 2013

    this money was donated from soundtouch and art xx
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  • jackie

    jackie page made a contribution   22 Apr 2013

    THIS MONEY £1035 WAS RAISED AT A CHARITY NIGHT "ROCK FOR JACK" WOULD LIKE TO THANK EVERYONE SO VERY MUCH x
    Post a reply   
  • A WCHS

    A WCHS Student made a contribution   20 Apr 2013


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  • Chris

    Chris Hope made a contribution   12 Apr 2013

    Jack is a gorgeous boy, and richly deserves any help that can be given to his cause.
    Post a reply   
  • jackie

    jackie page made a contribution   27 Mar 2013

    donated from nana and grandad
    Post a reply   
  • jackie

    jackie page made a contribution   25 Mar 2013

    from the people in Ryhope and silksworth THANK YOU X
    Post a reply   
  • jackie

    jackie page made a contribution   25 Mar 2013

    donation from people in Ryhope and silksworth sunderland THANK YOU x
    Post a reply   
  • Sarah

    Sarah miller posted a comment   14 Mar 2013

    I have just joined as found out my son has this he had just turned 1 when found out he 18 month now and hope if we all stick together we can hopefully get the funds so all our children can have a chance all the best to u all x
    Post a reply   
  • jackie

    jackie page made a contribution   12 Mar 2013

    donated from sunderland pharmacy thank you xx
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  • jackie

    jackie page made a contribution   25 Feb 2013

    THIS DONATION IS FROM A FRIEND CALLED SEAWOLF ,,, THANK YOU XXX
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  • jackie

    jackie page made a contribution   09 Feb 2013

    donated from the people of RYHOPE sunderland thank you
    Post a reply   
  • gemma

    gemma nelson made a contribution   15 Jan 2013

    Thank you to the kids at Blue WAtch youth centre. doing a sponsored bike ride xx
    Post a reply   
  • gemma

    gemma nelson made a contribution   15 Jan 2013

    Thank you to the kids at Blue WAtch youth centre. doing a sponsored bike ride xx
    Post a reply   
  • Robert

    Robert Francis made a contribution   14 Jan 2013

    Good luck with the treatment
    Post a reply   
  • jackie

    jackie page made a contribution   07 Jan 2013

    THIS DONATION IS FROM SUNDERLAND ROYAL MANUFACTURING UNIT (PHARMACY) THANK YOU XX
    Post a reply   
  • Chris

    Chris Hope made a contribution   06 Jan 2013

    Good luck with your fundraising x
    Post a reply   
  • Ian

    Ian Frame made a contribution   03 Jan 2013

    Best of luck with Jack`s fundraising campaign
    Post a reply   
  • jackie

    jackie page made a contribution   03 Jan 2013

    THIS HAS BEEN DONATED BY RYHOPE JUNIOR SCHOOL SUNDERLAND UK THANK YOU X
    Post a reply   
  • Janis

    Janis Taylor made a contribution   02 Jan 2013

    Appologies for taking sooooo long to upload this money. Here is the money i made whilst doing the million mile Sponsored Skate (well it felt like that at the time!!) - and i've since lost 3 toe nails from it lol!! Much love and keep up the good fundraising work. JanisXX
    Post a reply   
  • Parkside

    Parkside Surgery made a contribution   02 Jan 2013

    We collected money instead of sending each other Christmas Carda at work. I hope you reach your goal in 2013 xxx
    Post a reply   
  • Annemarie

    Annemarie Graham made a contribution   30 Dec 2012

    Thinking of you... Annie, Dame and kids xxx
    Post a reply   
  • gemma

    gemma nelson made a contribution   29 Dec 2012

    from staff at Devitos Sliksworth. Thank you xx
    Post a reply   
  • jackie

    jackie page made a contribution   27 Dec 2012

    this has been donated from the residents of ryhope sunderland uk
    Post a reply   
  • Jennifer

    Jennifer Lyons made a contribution   24 Dec 2012

    Best of luck with the fundraising x
    Post a reply   
  • Jennifer

    Jennifer Lyons made a contribution   24 Dec 2012

    Best of luck with the fundraising x
    Post a reply   
  • Janis

    Janis Taylor made a contribution   21 Dec 2012

    Sorry it has taken so long. Here is my £200 sponsor money I raised whilst doing the sponsored skate with Gemma and the rest of the crew. Was hard work but we made it. X
    Post a reply   
  • Janis

    Janis Taylor made a contribution   17 Dec 2012

    Here finaly is the £200 I raised whilst doing the sponsored skate. X
    Post a reply   
  • Janis

    Janis Taylor made a contribution   17 Dec 2012

    Here finaly is the £200 I raised whilst doing the sponsored skate. X
    Post a reply   
  • Janis

    Janis Taylor made a contribution   17 Dec 2012

    Hi, sorry its taken so long but finally, here is the Sponsor Money I raised from the Sponsored Skate we did. XXXX
    Post a reply   
  • jenny

    jenny ness made a contribution   16 Dec 2012

    Not much but hope it helps
    Post a reply   
  • jackie

    jackie page made a contribution   11 Dec 2012

    this has been donated from the people of Ryhope sunderland THANK YOU X
    Post a reply   
  • Beverley

    Beverley Courtie posted a comment   27 Nov 2012

    I only wish I could give you the full amount!
    Post a reply   
  • Michelle

    Michelle McDermott made a contribution   27 Nov 2012

    Good Luck with the fundraising xx
    Post a reply   
  • Claire

    Claire Sinclair made a contribution   27 Nov 2012

    Good luck, God bless
    Post a reply   
  • Michelle

    Michelle McDermott made a contribution   27 Nov 2012

    Good luck with the fundraising xxx
    Post a reply   


Invitees (86)   
Tessa
Robert
Shareagift
Elizabeth Anne
Tim
Ian
Parkside
Jennifer